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Revista chilena de pediatría

versión impresa ISSN 0370-4106

Resumen

SCHILLING, Karin W.; YOHANNESSEN, Karla  y  ARAYA, Magdalena. Perception of following gluten-free diet and adherence to treatment in pediatric patients with celiac disease. Rev. chil. pediatr. [online]. 2018, vol.89, n.2, pp.216-223.  Epub 04-Abr-2018. ISSN 0370-4106.  http://dx.doi.org/10.4067/s0370-41062018000100219.

Introduction:

Celiac disease (CD) is a chronic immune-mediated enteropathy present in ~1% of population. Gluten-free diet (GFD) is the only treatment for this condition and the main limitation of its efficacy is the lack of adherence.

Objective:

To assess factors influencing adherence to GFD in pediatric patients and measure the concordance between serological results and a nutritional adhe rence questionnaire.

Patients and Methods:

celiac patients younger than 18 years of age, diagnosed CD following ESPGHAN criteria, on GFD for at least 6 months and consulting at Hospital Roberto del Río, Santiago, in 2008-2016, were assessed. Clinical presentation, nutritional evaluation and fac tors related to adherence to treatment (diet) were registered. A subsample answered Biaggi's nutri tional questionnaire.

Results:

Of 65 evaluated patients, 44% and 30,1% adhered to GFD according to blood autoantibodies (TTG and EMA) and the adherence questionnaire, respectively. “Age at debut” (p = 0.049), “perception of following GFD correctly” (p = 0.002) and “behavior in social events” (p = 0.005) were significantly associated with adherence to GFD. There was concordance between serological test and Biagi’s questionnaire (p = 0.0001).

Discussion:

Adherence to GFD was lower than reported in literature. Intervention of some of the identified variables associated with adherence may help improving follow-up of celiac patients, especially those that due to diverse situations cannot measure their antibodies periodically.

Palabras clave : Celiac disease; gluten; adherence; perception; ESPGHAN.

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