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Revista chilena de cardiología

On-line version ISSN 0718-8560

Abstract

CASTILLO, María Elisa et al. Quality of life in patients with Congenital Heart Disease. Rev Chil Cardiol [online]. 2010, vol.29, n.1, pp.57-67. ISSN 0718-8560.  http://dx.doi.org/10.4067/S0718-85602010000100006.

Background: Surgical correction of congenital heart diseases (CHD) intends to improve quality of life (QL) in affected patients. In Chile this aspect has not been objectively evaluated, especially through comparison with normal children. Aim: to compare the quality oflife in three groups of CHD patients with that of normal controls. Three aspects of QL were evaluated. Methods: three groups of patients with CHD (Ventricular septal defect, Tetralogy of Fallot, Single Ventricle) were compared to a group ofhealthy children from the south east área of Santiago. A standard QL questionnaire was used to evaluate school performance, physical and general daily activities and family life . A treadmill test with a modified Bruce protocol was used to evaluate physical capacity Results: There were 12 patients in the VSD, 12 in the Fallot, 15 in the Single Ventricle and 20 in the normal groups. 52% were males. Age at each school level, school performance (grades and failure rates) were similar across groups except for a lower performance in patients with Single Ventricle. Physical capacity (duration of stress test) was lower in patients with Single Ventricle (7.3 min average) compared to normal (11.75min), VSD (12.2min) and Tetralogy of Fallot (10.0 min). The results ofthese test correlated with subjective performance of physical capacity. Similarly patients with Single Ventricle perceived a greater limitation for daily activities (60%) compared to VSD (100%), Fallot's (89%) and healthy controls (89%). In general, parents of CHD patients perceived a greater limitation compared to their children. Family life was not different among groups. Conclusions: The perception of QL in these patients with corrected CHD did not differ compared to healthy controls. Objective evaluation showed a lower physical capacity in patients with a more severe type of CHD.

Keywords : Quality of life; Congenital Heart Disease.

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